OUR MISSION
Is to provide people that suffer from Epidermolysis Bullosa (E.B.) with portable mobility devices. This enables them to live a more productive & independent lifestyle.
The picture shows Founder Hodges and EBlife's Original volunteer Vanessa donating our first mobility scooter to a young girl named Laxie and her mother Carol.
Having EB is not a choice It’s Our Lifestyle.
WHAT IS EB?
Epidermolysis Bullosa also known as E.B. is a rare genetic skin condition. The condition is caused due to the body not producting enough of Collagen proteins. In some case the collagen proteins are mutated within the body.
Collagen proteins are the glue, that anchors, the skin layers together between the epidermis & dermis of the skin. Without these vital proteins, the skin tears and blisters extremely easily. The skin is compared to be as fragile as the wings of a butterfly. This is why the Butterfly is the international symbol for the E.B. Community.
Sadly, there is no cure for E.B. Wound Care can be done to keep the skin healthy and free from infection.
It Wasn't A Choice
Every day activities for someone living with E.B. Can be extremely difficult. For example bathing, walking, even eating can be very painful.
EBLifeStyle Inc focuses on the mobility aspect for the EB community. Walking is extremely painful for anyone suffering from Epidermolysis Bullosa. This is why we donate lighweight, portabel mobility aids to the E.B. Community. Unfortunately, insurance companies consider lightweight, wheelchairs and medical scooters luxury items and will not cover them. However, with your donations, or by purchasing our very stylish merchandise, we can afford to donate, portable, lightweight mobility aids.
Our lightweight medical devices only weigh 40 to 60 pounds.
Highlights of Donations Made From EBLifeStyle Inc.
How We Can Make A Difference?
Through your support and donations, we can furnish these resilient individuals with the tools they need to navigate the world with greater ease and confidence.
This Enables a mom, a nurse, or caregiver to easily fold up the mobiity aid, and put it into the trunk of any compact vehicle.
Providing these lightweight mobility aids allow a person living with E.B. to be able to go to school without fear of someone, accidentally, bumping into them, or stepping on their feet, causing more damage.
A young adult can go to college and get around on campus with ease, or even get a job knowing that they will not have to worry about getting a specialized mobility vehicle just so they can be transported to and from work.
